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ORIGINAL RESEARCH ARTICLES |
Chinese Scientists’ Attitudes About Consent Policy Related To Human Genetic Databases
Xinqing ZHANG,a Yiqian BAOb
aCenter for Bioethics Peking Union Medical Collage, No. 5 Dong dan santiao, Beijing, China 100005bPeking Union Medical Collage Hospital No. 5 Dong dan santiao, Beijing, China 100005
This article focuses on the attitudes and perceptions of Chinese genetic scientists regarded to consent issues in the process of creation of genetic databases. In China, plans are being put in place for collecting, and using human genetic samples, while there is no clear consent policy at the national level. Little knowledge is available for a nationwide mail surveys was conducted in Shanghai, Beijing and other human genetic bases in China. A total of 300 Chinese scientists and Ethical Review Committees (ERBs) members sent back the valid questionnaires, with a response rate of 77%. The survey shows that the creation of genetic databases has been surrounded by controversy and debate about consent forms among Chinese biomedical community. Of the participants, 47.1% agree with family consent, 51.2% disagree with it, until 2.7% had no idea in banking of genetic samples. Among those proponents, the majority (82%) argue that: As the genetic information maybe share by the whole family, family members have the right to make the decision. Among those opponents, 69% insist that: a donor has the right of autonomy. The author suggests that the family-assisted individual consent may be an appropriate alternative. Proper measures should be taken to improve the quality of informed consent process in the Chinese context of genetic donation.Keywords: Informed consent, family consent, genetic database, ChinaTurkiye Klinikleri J Med Ethics 2007, 15:63-68
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